June 8, 2012

I know that it has been quite a while since my last post...seems like forever! To quickly bring everyone up to date...Ken tried continuing the trial on a reduced dosage, but the side effects remained just too much to handle...he had lost 26 pounds in 6 weeks...he had two different rashes, mouth ulcers, and several GI issues...We had been to multiple specialists and two trips to the ER...so in the beginning of May, he officially dropped out of the trial. The past month has been spent recovering...Ken has been getting steadily better as the drugs have left his system...and he is pretty much back to his old self...walking steadily and feeling pretty healthy. Today he had an MRI, which showed no change over his last one a month ago...so no growth. At this point there are no other clinical trials that he is eligible for, and his Dr. feels that further treatment is not warrented until the next reccurrence. So they will monitor him carefully with an MRI in one month, and if there continues to be no change, bimonthly from there forward. Next MRI is scheduled for July 6. I will probably update again after his next MRI...until then I hope everyone has a great month and is enjoying the start of summer!