July 19, 2013

We have been having a very fun and busy summer! Ken received his first infusion of BCNU about 6 weeks ago. He tolerated the new drug very well, and his symptoms seem to have subsided quite a bit. He continues to receive Avastin every other week, which is now done locally at Danbury Hospital with Dr. Rella. This is working out quite well for both of us as it is so much more convenient than traveling all the way into the city for a 20 minute infusion! In between treatments, we have been taking advantage of his renewed strength and have enjoyed wonderful weekend travels to Rhode Island and New Hampshire, as well as trying to spend as much time as possible simply having fun with friends and family. We both truly treasure these times and are so greatful to everyone for making them all possible! Today, we returned to New York for his MRI & appointment with Dr. Mellinghoff. I am happy to report that his scan was stable, and even shows a slight improvement over the last one!! Unfortunately, his white blood cells were too low for him to receive the BCNU today...he did get the Avastin, and we will try again for the BCNU next Friday. Overall, though, we were both relieved and happy with today's results! The next MRI is scheduled for September 6th!